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Living with EB
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eb-researchnetwork.org
Those living with EB can teach us lessons in humility, grace, and bravery. We are so grateful to have Chris Hemsworth help us tell the story of John Hudson at the #VentureintoCures Virtual Event. With your help, we can #HealEB forever. Head to ebresearch.org to learn more. Text HEALEB to 41411 to donate. | EB Research Partnership
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FacebookEB Research Partnership
John Hudson lives with epidermolysis bullosa (EB), a rare condition that makes his skin incredibly fragile and turns everyday life into a constant battle of care and pain. Through Special Books by Special Kids, his story has touched millions, not just for his resilience, but for the unwavering devotion of his father. From daily bandage changes to endless hospital visits, his dad has never left his side, carrying both the physical and emotional weight with quiet strength. Their bond has become a
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John Hudson lives with epidermolysis bullosa (EB), a rare …
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FacebookThe Quote Circle
John Hudson has been courageously battling Recessive Dystrophic EB (RDEB) for over 20 years, and in that time there has been remarkable progress made towards a cure for EB. Since 2010, EB Research Partnership has funded 140 innovative projects aimed at treating and curing EB. In fact, we were investors in the treatment John Hudson is using right now. In 2023 alone, we funded 7 curative projects. We won’t stop until a cure for EB is found. Donate today to help us fund life-saving RDEB research to
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John Hudson has been courageously battling Recessive …
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