Day two of EB Awareness .. it started with Marky singing to his favorite Christian rapper to being sung to by him .. which lead into an amazing Jesus filled brother hood @sevinhogmob @sevinhogmob #instagood #reels #awareness | MarkyStrong
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Day two of EB Awareness .. it started with Marky singing to his f…
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It’s day two of EB awareness … this was the first time Marky spoke openly about how he knows people see him and how he wants to be seen … Chris with @specialbooksbyspecialkids is a unicorn of a soul and we love him dearly .. #story #special #awareness #eb #wefighteb #mystory #viral #reels | MarkyStrong
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Living with EB
Living with EB
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Day two of EB Awareness week.. EB IS A VERY RARE GENETIC SKIN DISORDER THAT CAUSES SEVERE BLISTERING INSIDE AND OUTSIDE OF THE BODY IN RESPONSE TO MINOR INJURY, RUBBING OR FRICTION. EB AFFECTS 1 IN EVERY 20,000 BIRTHS, EB IS ALWAYS PAINFUL AND CAN LEAD TO EARLY DEATH, THERE IS NO CURE OR TREATEMENT AS OF TODAY. LETS CHANGE THAT ! #fyp #foryou #awareness #missingyou | MarkyStrong
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Kicking off the first day of EB awareness week please go to YouTube and watch markys interview with @specialbooksbyspecialkids and tag and share !! Help us make the worst disease you’ve never heard of be KNOWN!! #eb #ebawareness #ebawarenessweek #awareness #love | MarkyStrong
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Marky lives with epidermolysis bullosa, a disease that left him with a life expectancy of 13 years. His Mom, who already lost a son to the same condition, fears the day that Marky too will pass away. Marky wants his Mom to be happy when his time comes, reminding her to lean on her faith when he is no longer here. | Special Books by Special Kids
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