Travel planning has changed in recent years for columnist Allyx Formalejo and her husband, Jared, who has hemophilia.

A single infusion of gene therapy Beqvez led to sustained benefits over six years, results from a trial and extension study ...

Living with hemophilia B and von Willebrand disease means getting used to things people may consider unusual, says columnist.

Youth with hemophilia who play sports frequently may face a higher risk of bleeding. Bleeding episodes were most common among junior high school students who played sports more than three times per ...

Over the years, I’ve encouraged young parents by sharing what I’ve learned about raising children with hemophilia. My advice ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Not long after I started working at the Hemophilia Federation of ...

Children with hemophilia who do not have access to cutting-edge preventive therapies often experience bleeding in the brain, a study shows.

Columnist Jennifer Lynne recently attended the CHES Foundation's One Drop consortium, a powerful space for those with rare bleeding disorders.

There's no easy "fix" for depression, and encouraging professional help when needed isn’t abandonment, writes columnist.

CAAR-T therapy may eliminate FVIII inhibitors in hemophilia A, potentially improving replacement treatment effectiveness, a study shows.

Columnist Joe MacDonald taught his sons how to manage their hemophilia and be independent. But letting go of control is challenging, he says.

Taking charge of your health when you have hemophilia is of great importance. Regardless of your hemophilia type — A, B or C — the goal is to keep your joints strong and healthy, and to keep extra ...